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heartjanerre
Posts: 3
Joined: Thu May 14, 2015 5:34 am

New to the forum

Postby heartjanerre » Thu May 14, 2015 5:51 am

hello all im new to the forum

My nephew was born with some sort of defect and was diagnoses with cerebral palsy. He is the biggest joy in my life and i want to help him so much. He was happy and joyful but can hardly hold himself up it looks like he is losing the ability to walk and feed himself and just looks very sad now.His doctors have been switching us back and forth to new drugs including recently some Baclofen which has not really helped much and might have made his condition and emotions worse. Our doctors have no answers and so i have started to try to shed some light to see what is going on and see if we can possibly help him.

Hope to learn alot in this user forum.

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admin
Site Admin
Posts: 98
Joined: Wed May 10, 2006 2:18 pm

Re: New to the forum

Postby admin » Fri Jun 05, 2015 9:24 am

Hi,
Welcome to the forum. It sounds like the doctors are just guessing at this point. Were are you located? Is there a Shriners near by? Shriners has a lot of experience in assisting children with disabilities so it wouldn't be a bad idea to look into it.

TrishlaCP
Posts: 59
Joined: Thu Nov 26, 2015 4:41 am

Re: New to the forum

Postby TrishlaCP » Mon Dec 19, 2016 5:38 am

Hello Dear,
Welcome to cerebralpalsyforum
My name is Remo Berg from Trishla Foundation, the best cerebral palsy treatment center in India.
Nice to meet you here.