Will my cute son with mild CP walk one day?

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michelle2010
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Joined: Tue Mar 22, 2011 9:45 am

Will my cute son with mild CP walk one day?

Postby michelle2010 » Tue Mar 22, 2011 9:53 am

Hey, everybody, I am new to here and from Canada but live in Shanghai now. Hope to stay connected with you all. I find this website and groups here are quiet helpful.

I am very frustrated because my 2 and half year old son Darren who is a preemie born 2 months earlier has been diagnosied as mild CP when he was 19 months. Since my son did not have high muscle tones so the several doctors who was seeinng him earlier did not even confirm he had CP, and we tried 2 times of MRI but the test was not completed successfully because Darren cried and moved during MRI process. Until he was 19 months and still could not stand unassisted, then the neurologists and specialist in Shanghai here confirmed he could have mild CP with spastic on his legs. ( without the MRI test resulst) And he also had epilepsy at 2 and on medication right now.

He was showing normal after the birth however he did not hit the milestones afterwards, he sat on his own at 1, and crawl at 22 months. Since we are currently living in Shanghai, CHina, we are receving intensive therapy daily basis , PT and OT, there was imrovement for sure. And I also do the PT at home for him such as stretching, trained him stand.

My son was cute and happy I think his intelligence is normal, he talked well and could mimick well, his listening skill is very good, he loves the music and play the piano, he loves the car and crawled fast, and he has good memories and can count 1 to 100, he could even memorize and retell the story I told him. He could pull to stand, and crusied alot and could walk holding on something or hands, but he just could not stand on his own and walk on his own now. His rehabilitation doctor and PT told me during their observation, they found the key probem of my son is he is too cautious and not dare enough to do lots of movement on his own actually he could. His upper body was okay but his fine skill is delayed, recently he just started know to stack the blocks. But he was nervous when we asked him to stand on his own and must hold on something. Right now he can stand on his own leaning the wall at least 1 hour everyday.

Even though I showed strong infront of everyone and my husband , but had been crying almost every night because I could not believe this is the fact but as time goes by i started to accept, and I browsed lots of websites and found many kids with mild CP will grow up and getting close to normal kid and goes to normal school which inspired me alot.

The only concern i am having is will my son walk one day? I dont mind he is walking at 3 or 4 as long as he can walk on his own, I will be sooo happy. The rahabilitation doctor and therapist here in Shanghai told me that as long as he can crawl and cruise, he will walk one day. But his gait might be a little awkward, and they told me the gait can be corrected through braces or continuous PT, they also told me Darren can possbiliy go to normal school. I was happy to hear that but on the other hand I am afraid they are just comforting me and not tell me the truth. Honestly I do find he is improving, but I felt it is slow, and he is still cautious and likes to stick with me all the time. I am confident and trust he will make it one day, but i keep asking myself when??? Everytime I saw other normal kids running on the play ground my tears will come out for my son, I hope my sone will be one of them one day.

Has any one of you been through the similar experiences as mine and will like to share yours or any suggestion can give to me? I am thinking of bring my son back to Canada.
I heard the PT and OT is very good in North America, which rehaitliation center is the best? OR as a parent usually what will you do at home to exercise your kid?

thanks alot for your time if you read my long story.

Best wishes

Michelle

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healthinmotion
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Location: 4256 Bathurst Street, #204, Toronto, ON CA M3H 5Y8
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Re: Will my cute son with mild CP walk one day?

Postby healthinmotion » Thu Mar 24, 2011 10:21 am

Dear Michelle,

If your son can crawl and sit up, then based on what I’ve read, I personally believe that he will be able to walk. There is no exercise, but life; so yes, you would have to continue training him at home even with the best therapies he can receive. That is why when we work with a child at Health in Motion, we always train parents with the approach and assistance they need in order to help their child perform tasks independently. Your son will have to be trained in every movement and function. Only then will he not be afraid of doing this. Otherwise, he will be “cautious” as you have been told.

Please feel free to email us at healthinmotion@bellnet.ca or call us at (905) 707-0895 and I would be happy to answer any questions you may have.

Good luck!

Sincerely,
Natan Gendelman
Director / Osteopath
Health in Motion Rehabilitation | http://www.healthinmotionrehab.com
Toronto, ON Canada

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michelle2010
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Joined: Tue Mar 22, 2011 9:45 am

Re: Will my cute son with mild CP walk one day?

Postby michelle2010 » Tue Mar 29, 2011 9:31 am

Hi Nathan, thanks a lot for your advice, and I will certainly follow that to train my son. And hope there is a chance to visit healthmotion when I in toronto, and catch up with you later.

Best wishes,

Michelle

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healthinmotion
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Re: Will my cute son with mild CP walk one day?

Postby healthinmotion » Wed Mar 30, 2011 10:47 am

Hi Michelle,

You're more than welcome to come visit us next time you're in Toronto. Hope everything goes well. If you have any questions, I'm here to help.

All the best,

Natan Gendelman
Director / Osteopath
Health in Motion Rehabilitation | http://www.healthinmotionrehab.com
Toronto, ON Canada

---------------------------
Like us on Facebook! http://www.facebook.com/healthinmotionrehab
Follow us on Twitter! http://twitter.com/EnabledKids
Read our blog! http://www.enabledkids.ca
Register now for our LIFE Program for kids ages 0-12 and 12-15 with CP, Down syndrome ABI and pediatric stroke! Dates available for 2012. Spaces are limited.
Visit http://www.healthinmotionrehab.com/life-program.php

michelle2010
Posts: 4
Joined: Tue Mar 22, 2011 9:45 am

Re: Will my cute son with mild CP walk one day?

Postby michelle2010 » Wed May 18, 2011 9:40 am

Dear Dr. Natan:

I have actually called to your office to incquie on your LIFE program, I really want to bring my son to see you and attending the program. As I previously mentioned, my son has poor motor skill, even though he can sit unassisted,he could not sit upstraight, he bent over, and he could not change from one position to another position, for example from crawling to sitting. He is nervous of doing that, he has been in PT since 20 months till now and almost 1 year, I see little progress and improvement is very slow which worried me alot. And I started to question whether my son will walk alone day? Do you think your LIFE program can help, if it is worthwhile for my son to try, I may consider to bring him over however it can be very tough journey for my son to travel from calgary to Toronto, and we will have to find a service apartment close to your center. Is there any chance that I can invite you to fly over to Calgary to see my son and provide advice that I am willing to cover all the travelling and accomodation costs, because my son has eplipesy so he cannot be too stressed out and tired in his daily life. Thats why I am offering this to you I am really sorry for that, I knwo you must be very very busy and not delighted to do so, but at least I want to see whethere there is chance for that?

lilian

bvv070
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Joined: Fri Sep 23, 2011 2:56 am

Re: Will my cute son with mild CP walk one day?

Postby bvv070 » Fri Sep 23, 2011 3:11 am

Hey ,
My sister has CP , we came to China -Foshan city to visit a hospital with a special center for treating CP, we have been here for 1 year now and there is a huge Improvement - they use different methods and combine Chinese and western medicine together . They have a full program of activities and therapies for children with CP

shortyj1976
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Joined: Fri Sep 23, 2011 4:44 am

Re: Will my cute son with mild CP walk one day?

Postby shortyj1976 » Fri Sep 23, 2011 5:01 am

hello i just joined the forum and saw your post ...Let me first start by saying that you should not ever think for a moment
that your son may not walk ...it is just a simple matter of time...I have cerebral palsy and let me tell you my mother never
questioned wheither i could ever walk ...she had "specialists " from around the u.s. telling her that i might never walk.If you believe your son will walk then thats exactly what he will do..i did not start walking til i was 3 years old...i am 35 now ...i can walk,run play sports..i can do anything i set my mind to...and so will your son ...but no matter what struggles in life he goes through you have to remain positive...he has to have a good family base where people he loves can show him support in every aspect of his life...and above all never let him believe in the words "i can't" ...he can and he will...i wish you and your son well ...
Sincerely
Jason Biron

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healthinmotion
Posts: 38
Joined: Tue Jan 25, 2011 3:30 pm
Location: 4256 Bathurst Street, #204, Toronto, ON CA M3H 5Y8
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Re: Will my cute son with mild CP walk one day?

Postby healthinmotion » Fri Sep 23, 2011 3:27 pm

michelle2010 wrote:Dear Dr. Natan:

I have actually called to your office to incquie on your LIFE program, I really want to bring my son to see you and attending the program. As I previously mentioned, my son has poor motor skill, even though he can sit unassisted,he could not sit upstraight, he bent over, and he could not change from one position to another position, for example from crawling to sitting. He is nervous of doing that, he has been in PT since 20 months till now and almost 1 year, I see little progress and improvement is very slow which worried me alot. And I started to question whether my son will walk alone day? Do you think your LIFE program can help, if it is worthwhile for my son to try, I may consider to bring him over however it can be very tough journey for my son to travel from calgary to Toronto, and we will have to find a service apartment close to your center. Is there any chance that I can invite you to fly over to Calgary to see my son and provide advice that I am willing to cover all the travelling and accomodation costs, because my son has eplipesy so he cannot be too stressed out and tired in his daily life. Thats why I am offering this to you I am really sorry for that, I knwo you must be very very busy and not delighted to do so, but at least I want to see whethere there is chance for that?

lilian


Hi Michelle,
Thank you for your response. Please accept my apologies for not answering you right away, it had just come to my attention. The LIFE concept and methodologies is successful because it's based on daily skills which we teach the children to complete in their daily life. We also break down the walls between the clinic and the home by teaching parents how to guide and influence the child to gain independent function. I do believe we are able to help your son, but unfortunately it isn't feasible for me to fly to British Columbia at this point in time. I am currently booked until March and I have no time to fly, even though I want to help you son live an independent life. Maybe in the future it may be possible, but if you ever consider bringing your child to Toronto, we would be more than happy to meet you at the airport and give extended support during your stay, in addition to supporting you with finding a location near our clinic . Please keep in mind that me and my team are booking for March and the second team has a few spots available in November. To view the spots available you can view our schedule at: http://www.healthinmotionrehab.com. Once again I apologize for the response time and I hope to hear from you soon.

Warmest regards,

Natan
Register now for our LIFE Program for kids ages 0-12 and 12-15 with CP, Down syndrome ABI and pediatric stroke! Dates available for 2012. Spaces are limited.
Visit http://www.healthinmotionrehab.com/life-program.php

Arussven
Posts: 2
Joined: Thu Sep 01, 2011 2:53 pm

Re: Will my cute son with mild CP walk one day?

Postby Arussven » Sun Sep 25, 2011 3:18 am

Dear Michelle,

I believe that the competent instructor of yoga can help your child.
Read my message about my rehabilitation for such children.
yoga-therapy-against-cp-t2954.html
1. You should see, that every developing step for your child is really nice moving forward.
2. If you believe it your son will do it!
3. You should ever think for a moment that your son may walk, dance, run and so on!
4. In case your child has a good brain activity, your goal really possible!
5. You should have to continue training him at home.
6. Your son should receive not only training his feet and a back. He needs to train his lungs and heart. It is necessary, and the masseur should do the relaxing and warming massage.
7. It is necessary, that child’s muscles should be in a normal (not spastic or rigid) position as much as possible during the daytime as normal children have.
For this purpose, it is necessary to use special constructions (crampons, brackets, braces, cover plates) periodically for lower limbs which fix feet and legs and help to be in a vertical standing position.
I help schoolchildren with CP and a Down syndrome, the adult - spondylitis, perases and paralyses, after strokes, at a hypertensive crisis, with severe problems in a backbone and joints.
Now I work as the private businessman in Sweden. It’s my bona fide residence. I haven’t any clinic in Stockholm. I serve my patients during my visits them.
At the present time I don’t have so many clients here. And I am ready to leave this country for another one in case when I could find much more clients there.
For example, there are several families in another country, town/city with CP children, and they together want to help their children. I am ready to start work and live in one family. I can help with rehabilitation CP children/teenagers which live in the same town or city. It is much more suitable way in Europe for me. At the same situation I am ready to start my rehabilitation.
Your immediate goal is to find the experienced specialist in this area.
Your ultimate goal is the fine health for your son.
Toronto is very big city. I think that there is no any necessity for you to visit any other country to find special clinic or methods. I see the really possible to find a trainer or any other rehabilitator in you country or city.

But… Toronto is so far apart for me…

In any way – good luck!

Alexander