CP diagnosis at 11 years? Newbie here :)

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Autismmom2
Posts: 4
Joined: Tue Jun 21, 2016 3:48 pm

CP diagnosis at 11 years? Newbie here :)

Postby Autismmom2 » Tue Jun 21, 2016 4:25 pm

Hi all!

I have an 11 year old who has been considered complex for a very long time. No one has ever really diagnosed him. He's had many labels slapped on, but those labels don't really fit as diagnoses, if you know what I mean.

Everything, or anything he has is mild. Very mild, and he's very high functioning. He can run, ride a bike, ride a skateboard (when he's not falling off!), swim. He can safely ride his bike to the library (but not at the moment as his motor planning seems poorer and he's been getting hurt almost daily).

His labels at the moment are autism, ADHD, and he has a borderline iq (this iq fits). His OT thinks he has developmental coordination disorder. He's been in and out of PT since he was 18ish months for tight muscles from his lower back through heel cords. He also gets speech. He's been in and out of OT and speech since 18 months too, but never discharged annoyingly like in PT.

While in PT, his muscles loosen, balance is better, and motor planning is better. He makes progress quickly, but loses it all soon after discharge.

When he falls, he falls hard. And he always gets hurt in weird ways. He currently has 3 large bruises on his upper right thigh, road rash on the left leg, and a bruise on the left front ankle. These are from 2 separate falls.

A neurologist once said he *might* have extremely mild CP, but that she couldn't diagnose it with a normal MRI. However, his MRI wasn't completely normal. His cerebellar tonsils were slightly low and slightly squished (not enough for a chiari malformation diagnosis). MRI 3 years later was completely normal. This CP neuro's report said NO cp, even though it was a tiny possibility presented verbally.

Another neuro said "some degree of cerebellar dysfunction."

When he was little, he had a slightly funky gait. His left side was a touch weaker than the right. Most notable when walking down a set of steps. Instead of facing straight, he faced slightly to the right, and the left side weakness stood out a little more. Also, when he was playing, he never squatted like a typical kid. He'd drop the left knee to the ground. This was consistent, and to the point that every single pair of pants he's ever owned gets a big hole in the left knee and only the left knee.

When he was under 4, he would run with his arms "postured" almost at shoulder height, and he ran crooked favoring the right. To learn to pedal, he needed OT, and we had to tape his feet to the pedals.

He can't write in print with any consistency, but copies beautiful cursive if in a good mood. He's a great drummer, but seems to have regressed a bit recently. He is only doing academics at a 1st to 3rd grade level, and he's going into 6th grade. Nothing comes easy to him, and when he "gets" something, there's a good chance he'll lose it. But it'll either come back, or he'll gain some completely unrelated skill I worked on years prior. Lol

I guess my questions;

Where does developmental coordination disorder end and CP begin?

Are CP and learning disabilities a given, or just a common occurrence?

Would a diagnosis do anything for him?

Autismmom2
Posts: 4
Joined: Tue Jun 21, 2016 3:48 pm

Re: CP diagnosis at 11 years? Newbie here :)

Postby Autismmom2 » Tue Jun 21, 2016 4:32 pm

Forgot to add; he was born full term with no complications. He passed muconium, but did not aspirate.

He started banging his head side to side at about 2 weeks of age.

Early intervention noted the tightness and lack of expressive language (babbling) at 8 months.

He rolled late (8 months). Sat normal (5 months, but could not do anything, including get himself to sitting). Walked normal (13 months). Spoke late (over 2).

Autismmom2
Posts: 4
Joined: Tue Jun 21, 2016 3:48 pm

Re: CP diagnosis at 11 years? Newbie here :)

Postby Autismmom2 » Tue Jun 21, 2016 4:33 pm

Another forgotten; he's a toe walker. Much better now, but will still wear out shoes at the front way befor the heel.