Where to Start?

Here parents of children with Cerebral Palsy can post questions about caring for their child and get advice on special needs and care.

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StrongInside
Posts: 4
Joined: Thu Aug 19, 2010 10:43 am

Where to Start?

Postby StrongInside » Tue Aug 31, 2010 8:54 am

As I mentioned previously, my sister's daughter (my niece) was recently diagnosed with cerebral palsy. Right now, we're both experiencing a conundrum. My sister is really distraught about all of this news and is a tad lost at the moment. As for myself, I'm simply trying to be a good, big sister and help out in any way I can. The only problem is that I don't know where to start assisting. I've read up on all sorts of CP treatments, but I haven't found any information on "start-up" treatments -- especially for young children. Does anyone have any sort of advice? Thanks! :)
Peace begins with a smile.
Mother Teresa
If you say "I've Fallen and I can't get up." I'll be there for you.

kristy77
Posts: 12
Joined: Fri Aug 13, 2010 6:54 pm

Re: Where to Start?

Postby kristy77 » Tue Aug 31, 2010 2:36 pm

The best thing to do is to ring your local Cerebral Palsy League or Association. There are alot of therapies out their that promise alot but don't necessarily help. Your local CP League will be able to point you in the right direction. If you don't have a CP League, then finding a Physio and Occupational Therapist who work with CP are your best bet. The earlier and more intervention therapy you do, the better chance for a good life.
Hope that helps.
BTW - good on you for being so supportive of your sister, I still haven't even heard from my brother since my daughter has been diagnosed.
Just being there and giving your sister a hug and saying your sorry that this has happened is a good thing too. All my friends who keep saying "It will be alright" is not helping! All I want is for them to just give me a hug and say they are so sorry this is happening. :(

subrata
Posts: 40
Joined: Wed Jan 26, 2011 7:06 am

Re: Where to Start?

Postby subrata » Tue Feb 22, 2011 2:24 am

There is no cure for cerebral palsy. With early and ongoing treatment, however, the disabilities associated with cerebral palsy can be reduced. Many different therapies are available, most under the supervision of a medical specialist or other allied professional. Not all of these therapies are right for every person with cerebral palsy. The therapy regimen for a specific individual with cerebral palsy should be tailored to meet the needs of that individual. A treatment may work for one child but not for another. The parents and the child’s care team work together to choose only those treatments that offer some benefit to the child.

aurther11
Posts: 8
Joined: Sat Jun 25, 2011 2:23 pm

Re: Where to Start?

Postby aurther11 » Sat Jun 25, 2011 2:36 pm

NICE AND INFORMATIVE POST.VERY USEFUL TO CP PATIENT.

mike0009
Posts: 16
Joined: Mon Aug 22, 2011 10:36 am

Re: Where to Start?

Postby mike0009 » Thu Aug 25, 2011 7:10 am

Cerebral palsy (CP) is a disorder that affects muscle tone, movement, and motor skills (the ability to move in a coordinated and purposeful way). Cerebral palsy can also lead to other health issues, including vision, hearing, and speech problems, and learning disabilities.

CP is usually caused by brain damage that occurs before or during a child's birth, or during the first 3 to 5 years of a child's life. There is no cure for CP, but treatment, therapy, special equipment, and, in some cases, surgery can help a child who is living with the condition.