My dealings with Shriners

If you have used Shriners Hospital for Cerebral Palsy, post your experiences here.

Moderators: Tmagic650, Lori-ann

keithos27
Posts: 2
Joined: Sat Oct 14, 2006 2:05 pm

Postby keithos27 » Sat Oct 14, 2006 6:47 pm

is it okay if I put up an animated avatar on my profile?

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admin
Site Admin
Posts: 98
Joined: Wed May 10, 2006 2:18 pm

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Postby admin » Mon Oct 16, 2006 10:08 am

Yeah, feel free to add your avatar. The forum should be set up to accept them. Please let me know if you have any problems. You can e-mail me at admin@cerebralpalsyforum.net

sarahsmom
Posts: 45
Joined: Tue Apr 07, 2009 4:03 pm
Location: Florida
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Postby sarahsmom » Tue Apr 07, 2009 4:59 pm

My daughter sees them. They are great (we go to the Tampa one). They gave her AFOs and hand splits for free and they evaluate her every few months. They have said that if she needs botox injections for her legs they would do that at no cost.

MontanaMom
Posts: 3
Joined: Fri May 22, 2009 8:04 pm

Spokane Shriners

Postby MontanaMom » Fri May 22, 2009 8:51 pm

My daughter started going to Shriners when we moved from California to Montana and the new medical insurance would not cover her pre-existing condition. We have always had great care there. They oversee all of her orthopedic issues. Her doctor is comfortable consulting with other physicians about new therapies and procedures. She tried Botox through a different physician that was recommended by her regular orthopedic doctor at Shriners.
We received news at our last appointment that the Shriners may be closing the Spokane Hospital due to funding problems. I am worried about where we will be able to go for care. We are on a schedule heading into surgery for my daughter later this year and I am hopeful that we will still be receiving our care at the Shriners Hospital in Spokane.

JessieLynn
Posts: 3
Joined: Sat Nov 14, 2009 7:40 pm
Location: Missouri

Postby JessieLynn » Sat Nov 14, 2009 9:19 pm

I have very fond memories, and a few scary ones of Shriner's. The doctors were wonderful, but most of all it gave me a good dose of reality. I saw many kids there much worse off than me and, for a while, I would stop feeling sorry for myself. The only thing I regret about Shriner's is that i can't go back. I'm starting to have more problems as I'm reaching thirty and have nowhere to go except a billion different specialist I can't go to because i can't get health insurance. All because of that pesky little thing they like to call 'preexisting condition.' Sigh...

God bless Shriner's. They helped me and my parent's when we need it the most and if I ever win the lottery they're getting a big thank you from this girl!

storm
Posts: 2
Joined: Thu Feb 18, 2010 5:12 am

my experience at shriners

Postby storm » Thu Feb 18, 2010 5:48 am

[size=18][/size] I went to shriners in salt lake. I have had a surgery there and I loved it because the gave me food from the cafeteria which is so yummy :P I got to play my nintendo 64 and they had a big screen tv upstairs. I loved the nurses they were very nice. I had the best care. I told the doctor I didn't want to leave.

jonnydew007
Posts: 9
Joined: Fri Nov 05, 2010 11:29 pm
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Re: My dealings with Shriners

Postby jonnydew007 » Fri Nov 05, 2010 11:46 pm

Shriners is one of the best places i have ever been in my life. One of my friend is in there. And i love to see there hard work for the society. I am very pleased with them. I also suggested one of my relatives to go there for CP. For many years i didn't went there. Thanks for reminding me of this wonderful place. I will definitely visit that place soon.

subrata
Posts: 40
Joined: Wed Jan 26, 2011 7:06 am

Re: My dealings with Shriners

Postby subrata » Fri Feb 04, 2011 8:50 am

Hi Admin,
I understand your problem.What shriners did to you is really appreciable.

wilsonjohn
Posts: 11
Joined: Sat Jul 02, 2011 12:16 pm

Re: My dealings with Shriners

Postby wilsonjohn » Sat Jul 02, 2011 12:31 pm

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michalrider
Posts: 1
Joined: Thu Jul 12, 2012 11:15 pm
Location: USA
Contact:

Re: My dealings with Shriners

Postby michalrider » Thu Jul 12, 2012 11:40 pm

Its very good memories, and a few scary ones of Shriner's. The doctors were wonderful, but most of all it gave me a good dose of reality. I saw many kids there much worse off than me and, for a while, I would stop feeling sorry for myself.

alexjoe025
Posts: 1
Joined: Mon Nov 13, 2017 1:25 am
Location: Louisiana
Contact:

Re: My dealings with Shriners

Postby alexjoe025 » Mon Nov 13, 2017 1:37 am

Children's hospitals are characterized by greater attention to the psychosocial support of children and their families. Shriners is one of the best.